When the Experts Were Wrong About My Daughter With Cri du Chat Syndrome https://themighty.com/2016/05/mother-raises-awareness-for-cri-du-chat-syndrome/ Advertisements
Why Thalassemia Is My Worst Enemy and Best Friend https://themighty.com/2016/09/what-its-like-to-live-with-beta-thalessemia-major/
How Isolation Impacts Those Suffering With Rare Disease https://globalgenes.org/raredaily/how-isolation-impacts-those-suffering-with-rare-disease/
Living without a label: parenting an undiagnosed child https://themighty.com/2017/08/living-without-a-label-parenting-an-undiagnosed-child/
Why I believe people with rare diseases are so easily forgotten https://themighty.com/2017/08/forgotten-people-with-rare-disease/
15 things people affected by rare diseases wish their friends knew https://themighty.com/2016/08/how-to-help-a-friend-with-a-rare-disease/?utm_source=Facebook&utm_medium=RareDisease_Page&utm_campaign=RareDisease
The strength of a mother to a child with an undiagnosed rare condition https://themighty.com/2017/07/mom-2p16-3-microdeletion/?utm_source=Facebook&utm_medium=RareDisease_Page
