The Pain of Rare Disease No One Talks About https://themighty.com/2016/10/osteogenesis-imperfecta-and-the-pain-rare-disease-patients-experience/
The Hardest Parts of Having a Rare Disease https://themighty.com/2016/09/what-its-like-to-have-a-rare-disease/
When I Found Out My Son and I Have the Same Rare Disorder https://themighty.com/2016/10/men-2a-the-rare-disorder-my-son-and-i-share/
6 Things Doctors Often Say to Women, But Not to Men https://themighty.com/2018/07/what-doctors-say-to-women-dercums-disease/
When Going to a Doctor Appointment Is Like Preparing for Battle https://themighty.com/2017/10/autonomic-dysfunction-fighting-doctors-for-answers/
4 Things I’ve Learned From Loving a Dying Child https://themighty.com/2015/11/fanconi-anemia-what-ive-learned-from-loving-a-dying-child/
When the Stress of Having a Rare Illness Took a Toll on My Mental Health https://themighty.com/2016/10/how-having-a-rare-disease-affects-your-mental-health/
What It Feels Like to Crowdfund for Your Life-Saving Treatment https://themighty.com/2016/09/crowdfunding-for-your-rare-disease-treatment/
For the Moms Who Knew ‘What to Expect,’ But Woke Up to the Unexpected https://themighty.com/2016/09/lessons-learned-when-parenting-a-child-with-22q11-2-deletion-syndrome/
When the Experts Were Wrong About My Daughter With Cri du Chat Syndrome https://themighty.com/2016/05/mother-raises-awareness-for-cri-du-chat-syndrome/
