What It Feels Like to Crowdfund for Your Life-Saving Treatment https://themighty.com/2016/09/crowdfunding-for-your-rare-disease-treatment/ Advertisements
For the Moms Who Knew ‘What to Expect,’ But Woke Up to the Unexpected https://themighty.com/2016/09/lessons-learned-when-parenting-a-child-with-22q11-2-deletion-syndrome/
When the Experts Were Wrong About My Daughter With Cri du Chat Syndrome https://themighty.com/2016/05/mother-raises-awareness-for-cri-du-chat-syndrome/
Why Thalassemia Is My Worst Enemy and Best Friend https://themighty.com/2016/09/what-its-like-to-live-with-beta-thalessemia-major/
How Isolation Impacts Those Suffering With Rare Disease https://globalgenes.org/raredaily/how-isolation-impacts-those-suffering-with-rare-disease/
Living without a label: parenting an undiagnosed child https://themighty.com/2017/08/living-without-a-label-parenting-an-undiagnosed-child/
Why I believe people with rare diseases are so easily forgotten https://themighty.com/2017/08/forgotten-people-with-rare-disease/
