Skip to content

Reading list

catalogue

  • Home
  • About
  • Twitter
  • Facebook
  • Google+
  • GitHub
  • WordPress.com

Tag: rare illness

The Pain of Rare Disease No One Talks About

https://themighty.com/2016/10/osteogenesis-imperfecta-and-the-pain-rare-disease-patients-experience/

Author narrlibrusPosted on October 16, 2018Categories rare illnessTags rare illnessLeave a comment on The Pain of Rare Disease No One Talks About

The Hardest Parts of Having a Rare Disease

https://themighty.com/2016/09/what-its-like-to-have-a-rare-disease/

Author narrlibrusPosted on October 15, 2018Categories rare illnessTags rare illnessLeave a comment on The Hardest Parts of Having a Rare Disease

When I Found Out My Son and I Have the Same Rare Disorder

https://themighty.com/2016/10/men-2a-the-rare-disorder-my-son-and-i-share/

Author narrlibrusPosted on October 12, 2018Categories rare illnessTags rare illnessLeave a comment on When I Found Out My Son and I Have the Same Rare Disorder

6 Things Doctors Often Say to Women, But Not to Men

https://themighty.com/2018/07/what-doctors-say-to-women-dercums-disease/

Author narrlibrusPosted on October 9, 2018Categories rare illness, relationships while chronically ill, traumatic experiencesTags communication, gender, medical professionals, rare illnessLeave a comment on 6 Things Doctors Often Say to Women, But Not to Men

When Going to a Doctor Appointment Is Like Preparing for Battle

https://themighty.com/2017/10/autonomic-dysfunction-fighting-doctors-for-answers/

Author narrlibrusPosted on October 7, 2018Categories rare illnessTags communication, dysautonomia, medical professionals, rare illnessLeave a comment on When Going to a Doctor Appointment Is Like Preparing for Battle

4 Things I’ve Learned From Loving a Dying Child

https://themighty.com/2015/11/fanconi-anemia-what-ive-learned-from-loving-a-dying-child/

Author narrlibrusPosted on October 5, 2018Categories rare illness, relationships while chronically illTags children, dying, parenting, rare illnessLeave a comment on 4 Things I’ve Learned From Loving a Dying Child

When the Stress of Having a Rare Illness Took a Toll on My Mental Health

https://themighty.com/2016/10/how-having-a-rare-disease-affects-your-mental-health/

Author narrlibrusPosted on October 5, 2018Categories anxiety, depression, rare illnessTags mental health, rare illness, stressLeave a comment on When the Stress of Having a Rare Illness Took a Toll on My Mental Health

What It Feels Like to Crowdfund for Your Life-Saving Treatment

https://themighty.com/2016/09/crowdfunding-for-your-rare-disease-treatment/

Author narrlibrusPosted on September 30, 2017September 30, 2017Categories rare illness, relationships while chronically illTags crowdfunding, feeling like a burden, rare illnessLeave a comment on What It Feels Like to Crowdfund for Your Life-Saving Treatment

For the Moms Who Knew ‘What to Expect,’ But Woke Up to the Unexpected

https://themighty.com/2016/09/lessons-learned-when-parenting-a-child-with-22q11-2-deletion-syndrome/

Author narrlibrusPosted on September 28, 2017Categories rare illness, relationships while chronically illTags children, disability, NICU, parenting, rare illnessLeave a comment on For the Moms Who Knew ‘What to Expect,’ But Woke Up to the Unexpected

When the Experts Were Wrong About My Daughter With Cri du Chat Syndrome

https://themighty.com/2016/05/mother-raises-awareness-for-cri-du-chat-syndrome/

Author narrlibrusPosted on September 21, 2017September 21, 2017Categories rare illnessTags children, cri du chat syndrome, educating the community, medical professionals, prognosis, rare illnessLeave a comment on When the Experts Were Wrong About My Daughter With Cri du Chat Syndrome

Posts navigation

Page 1 Page 2 Next page

Tags

  • ableism
  • abuse
  • acceptance
  • ACEs
  • ACT
  • adaptation
  • addiction
  • adolescents
  • adverse childhood experiences
  • anger
  • antidepressants
  • anxiety
  • anxiety attack
  • apps
  • asking for help
  • attitude
  • authorship of life
  • autoimmune diseases
  • bacteria
  • becoming your own case manager
  • belonging
  • blame
  • body
  • body scan
  • brain
  • brain fog
  • brain injury
  • breathing techniques
  • bullet journal
  • burnout
  • C-PTSD
  • caregiver
  • caregiving
  • change
  • character strengths
  • childhood trauma
  • children
  • choices
  • chronic fatigue
  • chronic pain
  • commitment
  • communication
  • community
  • compassion
  • connection
  • consequences of BI
  • consequences of traumatic experiences
  • contingency
  • coping strategies
  • cortisol
  • crisis
  • dating
  • death
  • depression
  • depression symptoms
  • depression types
  • despair
  • diagnosis
  • diagnostics
  • difficult feelings
  • dignity
  • disability
  • dominant discourses
  • dying
  • educating the community
  • emotions
  • empathy
  • employment
  • endometriosis
  • energy
  • exercise
  • expat
  • expressive writing
  • faking being well
  • family
  • fear
  • fear of death
  • feeling like a burden
  • fibromyalgia
  • flare
  • flare kit
  • flu
  • fluid planning
  • forgiveness
  • friendship
  • frustration
  • gaslighting
  • gratitude
  • grief
  • guilt
  • gut
  • habits
  • happiness
  • health
  • high-functioning
  • hope
  • human rights
  • identity
  • illness that won't get better
  • inflammation
  • insomnia
  • intrusive thoughts
  • invisible illness
  • journaling
  • kindness
  • kristin neff
  • land of the healthy
  • land of the sick
  • lies of depression
  • life lessons
  • loneliness
  • loss
  • love
  • lupus
  • marginalization
  • marriage
  • MBSR
  • meaning of life
  • medical professionals
  • medication
  • meditation
  • men
  • mental health
  • mental illness
  • microbiome
  • migration of identity
  • mindfulness practice
  • misdiagnosis
  • mistrust
  • motivation
  • multiple chronic conditions
  • multiple sclerosis
  • narrative identity
  • naturopathic diet
  • naturopathy
  • need for advocacy
  • negative emotions
  • negative identity conclusions
  • neuroplasticity
  • neuroscience
  • online connections
  • online counselling
  • pain
  • panic
  • panic attack
  • parenting
  • personality change
  • phases of chronic illness
  • planning
  • post-traumatic stress disorder
  • posttraumatic growth
  • posttraumatic stress
  • practices of anti-depression
  • psychotherapy
  • PTSD
  • purpose
  • quality of life
  • rare illness
  • recovery
  • rehabilitation
  • relationships
  • remission
  • research
  • resilience
  • respect
  • rheumatoid arthritis
  • rumination
  • sadness
  • self-blame
  • self-care
  • self-compassion
  • self-esteem
  • self-help
  • self-perception
  • sense of personal failure
  • sex
  • sexuality
  • shame
  • skills and knowledges
  • sleep
  • sleep disorders
  • social isolation
  • stigma
  • stigmatization
  • stress
  • stroke
  • suicide
  • support
  • time management
  • trauma
  • treatment
  • undiagnosed
  • vagus nerve
  • wellness
  • what not to say
  • what to say
  • women
  • work
  • writing
  • yoga

Categories

  • anxiety (238)
  • autoimmune diseases (92)
  • brain injury (55)
  • cancer (5)
  • depression (472)
  • fatigue (220)
  • genetics and neuroscience (38)
  • health and wellness (141)
  • identity (162)
  • mindfulness (131)
  • naturopathy (28)
  • online counselling (4)
  • pain (284)
  • practices of anti-depression (190)
  • rare illness (55)
  • relationships while chronically ill (372)
  • research (82)
  • self-care (242)
  • social isolation (150)
  • stages of the illness journey (63)
  • stroke (20)
  • therapeutic approaches (49)
  • therapeutic writing (36)
  • traumatic experiences (81)
  • treatment (36)
  • Uncategorized (3)
  • undiagnosed (20)
  • ways to support (129)

Text Widget

This is a text widget. The Text Widget allows you to add text or HTML to your sidebar. You can use a text widget to display text, links, images, HTML, or a combination of these. Edit them in the Widget section of the Customizer.

  • Home
  • About
  • Twitter
  • Facebook
  • Google+
  • GitHub
  • WordPress.com
Reading list Blog at WordPress.com.
Reading list
Create a free website or blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
Cancel